5th Annual Beat MPS Golf Scramble

Date: 10/11/2014
Time: 9:00 AM

Sugarloaf Golf Club
18 Golf Course Road
Sugarloaf, PA 18249

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Event Description: This event is to raise money to advance education, research, and therapies to find a treatment and cure for the children affected by MPS Type III-A, better known as Sanfilippo Syndrome, which is a genetic lysosomal storage disease (LSD) caused by the body's inability to produce specific enzymes. Normally, the body uses enzymes to break down and recycle materials in cells. In individuals with MPS and related diseases, the missing or insufficient enzyme prevents the proper recycling process, resulting in the storage of materials in virtually every cell of the body. As a result, cells do not perform properly and cause progressive damage throughout the body, including the heart, bones, joints, respiratory system, and central nervous system. While the disease may not be apparent at birth, signs and symptoms develop with age as more cells become damaged by the accumulation of cell materials. There is an estimate in the US that 1 in 25,000 births will result in some form of MPS. At the present time, there is no cure or treatments for this deadly disease, and these children rarely live into their 20's


Directions:
This event will be held at the Sugarloaf Golf Club, which is located at 18 Golf Course Road, Sugarloaf, PA, 18249.

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